French National Rare Disease Registry
Created in 2012
Up & running (A)
Existing signals show a regular activitySocial networks
1,012Activities
Entity types
Location
33 Bd de Picpus, 75012 Paris, France
Paris
France
Employees
Scale: 11-50
Estimated: 13
Engaged catalyst
26
0 0Added in Motherbase
1 year, 2 months ago
Value proposition
[Automatic translation follows] The French Rare Rare Disease Registry is a Project Managed the AP-HP (Paris University HospitalS) and financed by the French minister of health.
rare diseases, interoperability, computerized patient file, bamara, database, AI, data, AP-HP, and data warehouseOriginal language
The French National Rare Disease Registry is a project managed the AP-HP (Paris university hospitals) and financed by the French Ministry of Health.
maladies rares, interopérabilité, Dossier patient informatisé, BaMaRa, Base de données, IA, data, AP-HP, and entrepôt de données
Banque Nationale de Données Maladies Rares
La Banque Nationale de Données Maladies Rares (BNDMR) est un projet prioritaire du Plan National Maladies Rares 2, financé par le ministère de la Santé.
https://www.bndmr.fr/
| Catalyst | Type | Tweets | Articles | |
|---|---|---|---|---|
 | ANSM Agence nationale de sécurité du médicament et des produits de santé | Other 28 Feb 2025 | | |
 Leem Startup accelerator & VC, Pharmaceutical Manufacturing | Leem Startup accelerator & VC, Pharmaceutical Manufacturing | Other 28 Feb 2025 | | |
 Novartis Pharmaceutical, Pharmaceutical Manufacturing | Novartis Pharmaceutical, Pharmaceutical Manufacturing | Other 28 Feb 2025 | | |
 Roche Pharmaceutical, Biotechnology, Biotechnology Research | Roche Pharmaceutical, Biotechnology, Biotechnology Research | Other 28 Feb 2025 | | |
 | Agence Régionale de Santé Grand Est | Other 19 Feb 2025 | | |
 Eurostat European Union, Environmental Services | Eurostat European Union, Environmental Services | Other 19 Feb 2025 | | |
 | Agence du numérique en santé | Other 22 Nov 2024 | | |
 numeum IT Services and IT Consulting | numeum IT Services and IT Consulting | Other 22 Nov 2024 | | |
 Johnson & Johnson Pharmaceutical, Hospitals and Health Care | Johnson & Johnson Pharmaceutical, Hospitals and Health Care | Other 22 Nov 2024 | | |
 CNIL - Commission Nationale de l'Informatique et des Libertés Government Administration | CNIL - Commission Nationale de l'Informatique et des Libertés Government Administration | Other 17 Jun 2024 | | |