Value proposition

[Automatic translation follows] Giving life and raising the voice of people affected by a rare hemorrhagic disease.

An association recognized as being of public utility and approved to represent users of the health system, the French Association of Hemophiliacs (AFH) has given itself a role of information, mutual aid and defense of the rights of people with hemophilia , Willebrand disease and rare hemorrhagic diseases.
The association has a scientific council which it consults on medical and scientific issues. The AFH is a member of the World Federation of Hemophilia (WFH) and the European Hemophilia Consortium (EHC). She also participates in numerous inter-association works.
In the region, 24 committees establish close relationships with AFH members, bringing conviviality, exchanges of experiences and intergenerational relationships. They work in conjunction with hemophilia treatment centers and organize events each year to bring together patients, parents and healthcare professionals.
Present with the most important national and regional health authorities and authorities, the AFH campaigns for constant improvement of knowledge and treatments. She is required to work with health professionals within the steering committees of reference centers. The work of the AFH is based on four main axes: developing therapeutic education for patients as close as possible to their needs; develop volunteering and support regional committees; engage willingly in international solidarity actions; and lay the foundations of the association in terms of research.

Therapeutic patient education, International actions, Help and listening, and Research