Value proposition

Working alongside families to deliver lifeline services and support for the Huntington's community.

Scottish Huntington's Association is the only charity in Scotland exclusively dedicated to supporting families impacted by Huntington's disease.
It does this through a nationwide network of HD Specialists,, Youth Advisors and Financial Wellbeing Officers.
Huntington's is a hereditary neurological condition that causes severe physical and mental symptoms which can leave people unable to walk, talk, eat or swallow. It impairs thinking processes and may lead to serious mental illlness.
There are around 1100 people with Huntington's in Scotland with further 4000 potentially at risk of developing the incurable disease.

Symptom management, Emotional support, Carer support, Fundraising, Raising awareness, Services liaison, Financial wellbeing, Specialist support for young people, Family support, 1-2-1 support, Working with families, Advocacy, Campaigns and public engagement, Training and education, Local services, and International influence and connections