Filière Santé Maladies Rares NeuroSphinx
Created in 2014
- BETA
Up & running (A)
Existing signals show a regular activity Social networks
1,079Activities
Entity types
Location
Hôpital Necker-Enfants Malades, 149 Rue de Sèvres, 75743 Paris, France
Paris
France
Employees
Scale: 2-10
Estimated: 5
SIREN
970808911Engaged corporates
10
0 10Added in Motherbase
5 years, 3 months ago
healthtech Value proposition
[Automatic translation follows] NeuroSphinx coordinates all stakeholders in the management of rare pelvic and spinal cord malformations.
The Rare Disease Health Sectors are structures for coordinating stakeholders around a group of rare diseases.
Created in 2014 as part of the 2nd National Rare Disease Plan, their objective is to contribute to structuring the provision of care.
The NeuroSphinx Rare Disease Health Sector coordinates stakeholders specializing in rare pelvic and spinal cord malformations and their consequences, including incontinence disorders.
These are mainly rare diseases such as Spina Bifida, or rare anorectal and pelvic malformations or syringomyelia and Chiari malformations.
The NeuroSphinx Rare Diseases Health Sector is made up of 3 Rare Diseases Reference Centers: C-MAVEM, MAREP and MARVU.Original language
NeuroSphinx coordonne tous les acteurs de la prise en charge des malformations pelviennes et médullaires rares.
Les Filières de santé Maladies rares sont des structures de coordination d’acteurs autour d’un groupe de maladies rares.
Créées en 2014 dans le cadre du 2e Plan National Maladies Rares, elles ont pour objectif de contribuer à structurer l’offre de soins.
La Filière de santé Maladies rares NeuroSphinx coordonne les acteurs spécialisés dans les malformations pelviennes et médullaires rares et leurs conséquences, notamment les troubles de l’incontinence.
Il s’agit principalement de maladies rares telles que le Spina Bifida, ou les malformations ano-rectales et pelviennes rares ou encore les syringomyélies et malformations de chiari.
La Filière de santé Maladies rares NeuroSphinx est composée de 3 Centres de Références Maladies rares : C-MAVEM, MAREP et MARVU.
Neurosphinx – Filière de santé des malformations pelviennes et médullaires rares
https://neurosphinx.com/
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