Social networks
15,616 2,791Activities
Entity types
Location
7 Blackhorse Ln, London E17 6DS, UK
GB
United Kingdom
Employees
Scale: 11-50
Estimated: 19
Engaged corporates
8Added in Motherbase
2 years, 4 months agoThe largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK.
Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK. Our members and the people they support are at the heart of everything we do.
We advocate for fast and accurate diagnosis, good quality care and access to the best treatments. We actively support progress in research and engage with decision makers and the public about the challenges faced by our community.
We run two long standing projects:
- Rare Disease UK, a campaign focused on making sure the new UK Rare Diseases Framework is as successful as possible, and to ensure that people and families living with rare conditions have equitable access to high quality services, treatment and support.
- SWAN UK (syndromes without a name), the only dedicated support network in the UK for families that have a child or young adult with an undiagnosed genetic condition.
Patient Organisation, Voluntary Sector, Health Charity, NGO, rare disease, genetics, genomics, policy, and engagement
Corporate | Type | Tweets | Articles | |
---|---|---|---|---|
Financial Times Media, Newspaper Publishing | Financial Times Media, Newspaper Publishing | Other 28 Feb 2018 | | |
Illumina For Startups Startup accelerator & VC, Biotechnology, Biotechnology Research | Illumina For Startups Startup accelerator & VC, Biotechnology, Biotechnology Research | Other 6 Sep 2022 | | |
Greater Paris University Hospitals - AP-HP Health, Hospitals and Health Care | Greater Paris University Hospitals - AP-HP Health, Hospitals and Health Care | Other 30 May 2021 | | |
European Parliament European Union, Political Organizations | European Parliament European Union, Political Organizations | Other 17 Oct 2017 | | |
AstraZeneca Pharmaceutical, Pharmaceutical Manufacturing | AstraZeneca Pharmaceutical, Pharmaceutical Manufacturing | Other 22 Jun 2018 | | |
NHS England Insurance, Hospitals and Health Care | NHS England Insurance, Hospitals and Health Care | Other 30 Sep 2022 | | |
Alexion Pharmaceuticals, Inc. Pharmaceutical, Biotechnology, Biotechnology Research | Alexion Pharmaceuticals, Inc. Pharmaceutical, Biotechnology, Biotechnology Research | Other 16 Feb 2022 | | |
UK Atomic Energy Authority Research, National and local authorities | UK Atomic Energy Authority Research, National and local authorities | Other 6 Mar 2023 | |