Foundation For Rare Diseases
Created in 2012
- BETA
Up & running (A)
Existing signals show a regular activity Social networks
3,123 6,561Activities
Entity types
Location
96 Rue Didot, 75014 Paris, France
Paris
France
Employees
Scale: 11-50
Estimated: 21
SIREN
751931445Engaged corporates
30
7 22Added in Motherbase
5 years, 8 months ago
deeptech Value proposition
Foundation for Scientific Cooperation
The French Foundation for rare diseases (Fondation maladies rares) is a unique cooperative framework dedicated to rare diseases research. Co-founded by French University Hospitals, Universities, Research organisations and Patients’ organizations, it acts as a strategic hub to coordinate, federate and fund rare diseases research, essentially at the French national level.
The French Foundation for rare diseases is a non-profit private structure, created in February 2012.
Its support spans from basic, translational and clinical sciences to social and human research towards effective health care for patients affected by rare diseases. The Foundation has built strong links with its co-founders as well as several partnerships with private companies and is welcoming the development of additional partnerships to make the rare diseases issue better integrated in companies' health policies.
The Foundation brings financial support to innovative projects and stimulates cross-sector cooperation to accelerate scientific, medical and social innovations to the patients’ benefit. Priorities are driven by grounded needs.
Chercheur, Fondation, Accompagnement, maladie rare, santé, recherche santé, rare, projet scientifique, and fondation maladies raresOriginal language
Fondation de coopération scientifique
La Fondation Maladies Rares est un acteur engagé dans la recherche de nouveaux traitements.
La Fondation Maladies Rares a deux missions :
► décrypter les maladies rares en aidant au diagnostic et au développement de nouveaux médicaments
► améliorer le quotidien des personnes concernées
Pour cela, elle finance et accompagne des projets de recherche ciblés, répondant à un besoin précis sans réponse à ce jour. Ses interventions concernent donc des maillons manquants indispensables à l'avancée des projets.
Elle réunit les meilleures expertises et donne les moyens aux différents acteurs de travailler ensemble pour accélérer le développement de nouveaux traitements.
La Fondation Maladies Rares existe depuis 5 ans et les résultats sont déjà spectaculaires avec plus de 267 projets de recherche soutenus.
Son défi continue car il y a aujourd’hui plus de 7 000 maladies rares qui touchent 3 millions de personnes en France dont près de la moitié sont des enfants ... et 97% de ces maladies n’ont pas de traitement.
Découvrez ce qu'est la Fondation ? https://youtu.be/dpLb74OVprc
More informations on the Foundation For Rare Diseases : https://fondation-maladiesrares.org/eng/
Fondation Maladies Rares - Trouvons des traitements
La Fondation Maladies Rares favorise la conduite de projets de recherche scientifique ainsi que le partage de connaissances sur les maladies rares.
https://fondation-maladiesrares.org/
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