DéfiScience, Filière de Santé Maladies Rares
Created in 2014
- BETA
Up & running (A)
Existing signals show a regular activity Social networks
2,086 2,086Activities
Technologies
Entity types
Location
Lyon, France
Lyon
France
Employees
Scale: 2-10
Estimated: 7
Engaged corporates
6
0 5Added in Motherbase
9Â months, 1Â week ago
healthtech Value proposition
[Automatic translation follows] Bringing together expertise and improving the healthcare pathways of patients with Rare Neurodevelopmental Diseases.
đź“ŤThe DĂ©fiScience sector is aimed at patients with a Rare Neurodevelopmental Disease and the health, paramedical and medico-social professionals who support them.
🔎Its missions?
- Promote accessibility and harmonization of diagnostic, assessment and care practices.
- Encourage territorial coordination of stakeholders in people's healthcare and life pathways.
- Innovate in training in the field of rare brain developmental diseases.
- Encourage basic, translational and clinical research, data collection and innovation.Original language
Fédérer les expertises et améliorer les parcours de santé des patients atteints de Maladies Rares du Neurodéveloppement.
📍La filière DéfiScience s’adresse aux patients présentant une Maladie Rare du Neurodéveloppement et aux professionnels de santé, paramédicaux et médico-sociaux qui les accompagnent.
🔎Ses missions ?
- Favoriser l’accessibilité et l’harmonisation des pratiques de diagnostics, d’évaluations et de soins.
- Susciter la coordination territoriale des acteurs du parcours de santé et de vie des personnes.
- Innover en matière de formation dans le champ des maladies rares du développement cérébral.
- Encourager la recherche fondamentale, translationnelle et clinique, la collecte de données et l’innovation.
Accueil - DĂ©fiscience
https://defiscience.fr/
| Corporate | Type | Tweets | Articles | |
|---|---|---|---|---|
 CNRS Research, Research Services | CNRS Research, Research Services | Other 2 Nov 2024 | | |
 | Agence régionale de santé Bourgogne-Franche-Comté | Other 10 Oct 2024 | | |
 Fondation Adolphe de Rothschild NGO, Think Tank, Hospitals and Health Care | Fondation Adolphe de Rothschild NGO, Think Tank, Hospitals and Health Care | Other 29 Aug 2024 | | |
 | Haute Autorité de Santé | Other 21 Jul 2024 | | |
 | Gouvernement | Other 8 Nov 2024 | | |
 Greater Paris University Hospitals - AP-HP Health, Hospitals and Health Care | Greater Paris University Hospitals - AP-HP Health, Hospitals and Health Care | Other 27 Sep 2024 | | |